The lives of
about 50 million people worldwide have been shattered without any hope of
recovery by Alzheimer’s or some other form of dementia. The number is
increasing by about 10 million a year, according to the World Health
Organisation.
In Portugal,
around 200,000 people - more than twice as many women as men - have dementia.
That’s the latest round figure from the non-profit, non-governmental
organisation Alzheimer Europe.
At least as
many people giving close care to family or friends with dementia have been
heavily impacted by the disease, but in a very different way.
Dementia is
a cruel syndrome or group of symptoms associated with an ongoing decline of
brain functioning that usually develops slowly over years and sometimes without
clear cause.
In general,
carers only notice the symptoms some time after they break out as memory loss,
attention deficits or other cognitive impairments are assumed to be part of the
normal ageing process, says Dr Margarida Ferreira, a psychologist with the
Portugal Alzheimer association.
“We might be
a bit more forgetful as we grow older, but normally, after a while or with the
help of a cue, we are still able to recall. So the tendency among close family
and friends is usually to ignore early symptoms and only later, when something
significant or dangerous happens, do they think that all might not be
okay.”
Dr Ferreira
points out that close care-givers can be burdened with “physical, mental and
emotional exhaustion.”
In some cases, she says, “it is not only that you are
constantly supervising the person with dementia and helping them in their needs
without any training or someone to share the care, but also that role inversion,
as with a son taking care of a parent or a husband of a wife. This can add to
the loss of someone you once knew differently.”
Care-giving can exhaust a carer’s ability to remain calm and be patient
especially, for example, after repeatedly listening to the same talk over and
over again.
“This is generally because carers don’t have the time or support for
their own personal needs, which includes comprehension and acceptance of the
disease as well as managing their own feelings and expectations,” says Dr
Ferreira.
“This lack of self-care and support, along with other factors, can
in some cases lead to physical and mental health issues, such as anxiety and
depression.
Portimão and Lagoa host the two local offices of the Portuguese national
Alzheimer organization in the Algarve. This is where Dr Ferreira provides
professional advice upon appointment to those in need, according to each
specific situation.
“In some cases the main concern is the medication, in others personal
care or specific behaviours,” she says.
Dr Ferreira (pictured above) suggests that caring family and friends experiencing fatigue
should take advantage of the information available in English as well as
Portuguese on the Alzheimer Portugal website:. https://alzheimerportugal.org
Here we quote directly from part of the website….
10 Steps to Becoming a Healthier
Caregiver
Do you feel overwhelmed by caring for another person to the point of
neglecting your physical, mental, and emotional well-being? If you don't take the time to take care of yourself and your needs you
could be putting your life and health at risk.
Identify Changes as soon as Possible
Symptoms of dementia develop gradually. Whenever you notice significant changes in the person's memory, mood or
behaviour, talk to your doctor. Don't delay. Some symptoms can be
controlled.
Discover the Resources Available in
the Community
Find out about the support, services and equipment available. Day
centres and home support are some of the answers that can help you in providing
care and in carrying out day-to-day tasks.
Be Informed
As the disease progresses, it may be necessary to acquire specific
knowledge and skills to face the challenges that arise. Try to participate
in workshops and other training actions, with specific and diversified content,
which can help you understand and better deal with the changes in behaviour and
personality that accompany the disease.
Seek Help
Trying to do everything yourself can lead to exhaustion. Seek
support from family, friends and available resources in the
community. Help lines and support groups are some of the resources that
can help you find comfort and safety. If stress becomes disabling, seek
professional help.
Take Care of Yourself
Pay attention to your diet, exercise and rest as much as
possible.Watching your health will make you a better caregiver.
Control Your Stress Level
Stress can lead to physical disturbances (blurred vision,
gastrointestinal disturbances, high blood pressure) and behavioural changes
(irritability, lack of concentration, changes in appetite). Be aware of
your symptoms. Use relaxation techniques that make you feel better and
talk to your doctor.
Accept the Evolution of the
Disease
The needs of People with Dementia change over time and with the
evolution of the disease. Demands may exceed your
responsiveness. Knowing the resources of the community - day centres, home
support services and homes - can facilitate the decision to share the provision
of care with others.
Make Decisions of a Legal and /
or Financial Nature
Plan ahead in advance. Know your rights and those of the Person
with Dementia, as well as the legal procedures to be followed after diagnosis
and during the course of the illness. Involve, whenever possible, the
person with dementia and the closest family members.
Value Yourself and don't Blame
Yourself
Remember that your care makes a difference and that you are doing the
best you can. Don't blame yourself for not being able to do everything
yourself. Even though care may no longer be provided by you, as the disease
progresses, you can continue to ensure that the person is well cared for and
feels safe.
Talk to your Doctor Regularly
Make time for yourself, get regular routine checkups, and listen to what
your body tells you. Watch out for exhaustion, stress, sleep disturbances
and changes n n appetite and behaviour. Ignoring these symptoms can seriously affect your physical and mental
health.
The Care-giver in Stress.. ..
10 Warning Signs:
1. Denial about
the disease, its evolution and its effects on the diagnosed person.
“I know my mom will get better.”
2. Anger toward
the person with dementia or other people, anger that there is no cure, or by
the lack of understanding of others.
“If he asks the same question again, I scream!”
3. Social
isolation, withdrawal from friends and loss of interest in activities that
before he liked to do.
“I don't feel like hanging out with anyone anymore.”
4. Anxiety about
having to face one more day about the future.
“What will happen when he needs more care than I can
give?”
5. Depression
that affects well-being and the ability to cope with everyday challenges.
“I don't want to know
anymore.”
6. Exhaustion
feeling that it seems impossible to carry out the necessary daily tasks.
“I'm too tired for this.”
7. Insomnia
caused by an endless list of worries.
“What if during the night he gets up and falls?”
8. Irritability
that translates into bad mood and provokes negative responses and reactions.
" Leave me alone!”
9. Lack of concentration that impairs day-to-day activities
“I've been so busy I forgot I had an appointment.”
10. Health
problems that begin to compromise physical and psychological well-being.
“I don't remember the last time I felt good.”
To contact Alzheimer Portugal offices in Portimão and Lagoa:
From Monday to Friday: 9.30 to 12.30
+351 965 276 690
geral.algarve@alzheimerportugal.org